Sometimes any answer is best

The doctor can't explain why I slept the way I did and cant remember those several days. He's sending me another neurologist. This is frustrating. People keep saying well no news is good news. Forget that!! To a sick person, no news means no answers means I have to stay sick because they can't fix it! This is no way to live. Don't get me wrong, this is waayyy better than pre transplant.  But daily diarrhea,  vomiting, extreme fatigue,  and constant pain is not fun. And it's not normal! But it looks like I have no choice but to make it normal ugh.

I read an article about the effects of Crohn's disease on the brain and how it causes migraines and memory loss after about 10 years after onset of the disease.  Which I where I am (I was diagnosed 7 years ago,  but I was sick for several years prior to actually going to a doctor). I will find the article and post it on a separate post! It's so interesting and I think all of us crohnies and our caregivers need to read it and give it to your GI! It may actually explain my problems and my doctors are oblivious!  I'm plnning on taking to my gi, neurologist,  and oncologist.  I will let you know their feedback! :)

Sleeping Beauty

Omg im so exhausted.  I know I've already posted about this a million times but im so sick of sleeping my days away. I wamt to experience life again. It feels like this will never happen

But I gotta keep my head up because God has it all in control!

Sooo tired of being tired

I have been absolutely exhausted lately. I've had my 1st iron infusion and getting my 2nd next week. Anyone know how long it takes for me to have energy? Because I feel no different at all. Im literally sleeping all day and falling asleep when I drive. Im so sick of it. I want some energy asap!!

Yep I Got That Too

Since my blog is about my journey in Crohn's disease and my stem cell transplant, many of my followers and even friends, don't know all the other health issues I carry with me. I posted below pics of other health problems I have to deal with on a daily basis. Some have information attached,  some just state the problem. And some, as you will see, are very personal and this is the first time I have ever come out publicly. You will know what I mean when you get there. The point of this post is not to "show off" all my problems and definitely not for sympathy. I'm merely giving you a bit of insight in to the world of, well, me. And I hope some of them can help some of my readers feel more relatable and even give them more confidence and courage to seek medical attention for problems they may have as well! So here it goes!

Side note: I am seriously diagnosed with these issues. I am by far not a hypochondriac.  I would trade anything in the world to not have the health problems I have, but this is the life I've been given and there's no point in denying any of it. And if anyone of my fellow crohnies or loved ones of Crohn's patients know, many of these illnesses come hand in hand with autoimmune diseases such as Crohn's disease.

Sickly Guilt

Ive been given steroids and pain killers and let me tell you, im EXHAUSTED! !

I just ate a big meal with Tim, my fiance, and now we are watching Robocop.  But honestly,  im dozing off and think I may need to call it a night. I just feel so guilty,  like I'm making him suffer because I'm sick, and that's just not fair. I wish I could be better, not for me, but for him.