May 2018

I have been having a Crohn's flare lately and am going to try some Rowasa. I'm in so much pain and bloated.

I'm anemic. I don't really know why but I am. I can't take iron supplements because I just can't digest them. I don't know what to do. I eat as much as I can. I take gummy multivitamins but it's not enough. This is probably why I'm sooo exhausted. Not to mention I'm trying to quit caffeine and smoking. Lord, help me.

My arthritis is so so but restless legs is killing me and keeping me up. I see my rheumatologist in a few weeks so i guess I'll be bringing it up to him then. The stelara injections seem to help a good bit of the pain but I still get searing pain up my back and in my hands so that's something we still need to work on.

I already take antidepressants and anxiety meds but sometimes I go through rough patches where I feel so down for no reason at all. It's really to be expected with all I've been through. I'm always terrified of going somewhere and being sick or in constant pain. It's very PTSD-like. It's a panicky dread of leaving the house. If any of you feel this related to your IBD, please know you aren't alone. And I promise, you'll get through it!

UPDATE 2018

Here is my year so far:

I've been under stress so I've had a bit of a flare. I'm on Rowasa as needed for that.

My arthritis is bad. My rheumatologist thinks he may need to double my stelara dosage.  So we shall see.

I went to donate blood today and couldn't because my hemoglobin is 9.6. Guess i get to start some iron for that. But i have no idea why it is so low! Ugh!

About a month ago, i fell off a chair and scraped up my entire side, took a chunk out of it and hit my head pretty bad. The wound got infected because of my suppressed immune system. It's all healing now! It's going to leave a huge scar. And i had some brain trauma so I have to go back to my neurologist.

Updates to come!

Just Another Crohnie Day

I finished the Rowasa a month ago. i don't feel any different but my inflammation (C reactive protein went from a 6.8 to a 2.9) has gone down. i still have diarrhea and it's making me really sore!

I have spinal arthritis and the pain has been unbearable for the last year. so bad i had to quit the gym, i couldnt stand to cook, i couldnt even bend over to tie my shoes. About a month ago i was referred to a pain specialist and he injected nerve blockers in to my spine. my arthritis doctor is giving me steroid shots in my hips for bursitis (might be why my crp went down).  i feel soooooo good now! i even rejoined the gym! he hasn't gotten the stelara approved (hasn't been trying either) but he gave me samples last week so i could start it. im hoping that gives him the push to work on insurance approval!

i took a Pound class...dancing with drumsticks..this week and omg...it was a WORKOUT! I made the mistake of doing the same day as my steroid shots so i was HURTING! but it was a blast and awesome cardio so im going back for sure!

I've been trying to eat healthier. It's bot easy when healthy foods make you sick...thanks a lot crohn's! but im doing my best!

thats all for now! updates coming soon!