I am heading back to Chicago..but still not for treatment. Dr Burt's nurse called me this morning to tell me the senior pathologist looked at my colonoscopy slides from February and thought I have ulcerative colitis, not Crohn's, which changes EVERYTHING. But they want to do a colonoscopy themselves and look at my disease first hand. This is so not going to be fun...especially since I JUST had a colonocopy and it was incredibly painful. But they need to make an accurate diagnosis. If they make the wrong diagnosis and do the wrong procedure, whatever disease I have is sure to return. But if they make the right diagnosis and perform the right procedure, my chances of being "cured" or atleast in remission for a VERY long time is really high! So it's crucial for me to go and do this..i doubt they'll even do anything for me unless I do, it's just too risky not being 100% sure.
I'm very frustrated. I've been waiting for so long and still no answers..its exhausting..and expensive. I'm fortunate for family who is willing to go that extra mile with me. My best friend, Candice wants to go with me to Chicago. If she can't then my grandmother will go. i found a private plane charity that will fly me from Greenville to Chicago for free...downfall? no bathrooms on the plane...ugh, that means two 2 1/2 hour flights with absolutely no way to use the bathroom if i need to...but it's free!I'm also going to see about getting a discounted hotel room. we will see! If anyone knows of any services to help me, let me know!!
I'm still feeling pretty nauseous and dizzy and still in a lot of unmanageable pain but not nearly as bad as the other day so thats good. I think I'm having some acid reflux problems too so Dr Holt called me in some meds for that.
Well as always, say some prayers! I'm gonna need them! LOL
