Update out of hospital

I was rushed to the ER Tuesday because I felt perfectly fine and then it suddenly felt like something exploded inside of me. They admitted me and I was put on vancomycin even though my labs came back negative for any infections. I started feeling better by Friday but Dr Burt told the doctors to go ahead with a colonoscopy and with an ultrasound on my liver and pancreas because my liver enzymes were high.

Ok here's the results: I got magnesium, my hemoglobin dropped to 8 but I didn't get a blood transfusion. They stopped my voriconizole and cell cept. Liver and pancreas are fine! My liver enzymes will be monitored!

My colonoscopy showed only 3 ulcers, a few polyps, significantly reduced inflammation, and the part of my colon which was once full of inflammation and ulcers nearest my small bowel is now completely clear.

In other words... The stem cell transplant in only 4 months has almost completely put me in remission!! God is so good and I can't help but cry at how blessed I feel right now!!

Update from mid january

Ok so I saw my GI dr. I'm going back on vancomycin for c diff even though my test came back negative, it could still be living in my body. I'm on Ativan plus pexeva to help with anxiety and sleep. I went to sleep before midnight lastnight and slept until 2pm and feel amazing today! I don't know if its because I was exhausted or because of the Ativan. We will see!  I'm also now on something for my migraines which is helping too. And I'm taking carafate to help coat my stomach and reduce the burning I'm having. So far so good!!

Note: I was also told to stop taking the phenergan for nausea because it is linked to causing me to have restless legs at night!! Thought this info might help some of you!

Four months post transplant!

Well I'm still being treated for c diff since my Crohn's symptoms have been suddenly and significantly worse this past week but I'm feeling better. It could very well be because of something I've eaten since I'm now eating anything I want now.. I'm thinking I should slow down a bit and allow myself to heal more. I also had a sinus infection and eye infection but its gone now after some antibiotics. I'm having issues sleeping again so it's back to the doctor for something to help me sleep and help with my anxiety since I'm having coping issues as well. We are also changing around my birth control and hormone meds because I was bleeding for 2 months straight and right after my blood transfusion, my hemoglobin dropped suddenly once again. But one positive thing is I'm never in pain from my Crohn's. I experience some burning in my stomach but I think it's from my acid reflux. Well! That's all dr now!

Improving

Updates aren't as common since I'm starting to really feel better. I'm having lady issues which I'm guessing is from the chemo since the doctors can't figure it out but other than that I'm seeing huge improvement since surgery a couple weeks ago! Thank you all for your continued prayers and I will continue to update you on my progress!

Surgery!!

Ok so I went to the ER last Thursday morning. Turns out I needed emergency gallbladder surgery. Soooo wasn't expecting that! It was very enlarged and inflamed with adema and scarring from previous infections and issues. My fevers didn't go away after surgery so they put me on vancomycin and flagyll and kept me until Tuesday to make sure my fevers were going away. So far so good. Just gotta keep being safe and taking these antibiotics!!

2 months since infusion

I'm in a lot of pain and even though I was able to eat some spaghettios today, I'm still nauseous. They're putting me back on flagyll in case it's the c diff but a virus has been going around so idk. I haven't been around any sick people but who knows. I'm also super super super dizzy. I'm getting a blood transfusion tomorrow so hopefully ill feel better after that. 

Almost 2 months post transfusion

Well I'm getting over the c diff. My stomach pain is completely gone!!! I'm still experiencing some mild diarrhea but its most likely a side effect from my meds. My PCP has increased the meds for my heart palpitations and prescribed me something to increase my appetite since my appetite is nonexistent at this point. I have only eaten a small order of curly fries in the last 3 days. I've lost 20lbs, which I'm not totally mad about lol but this isn't the right way to lose weight. I only take half a pain killer a day now and thts for my back! Not my Crohn's!! Yay!! Other than that the only thing I have to worry about is my hemoglobin. It's dropping and if it doesn't start increasing I will need a blood transfusion. So lets pray about that!!