I have severe Crohn's disease and I'm going through quite a journey. I've stopped responding to conventional treatments and here's my story as I try to find a way to get my life back!
Sunday, December 2, 2012
Improving
Updates aren't as common since I'm starting to really feel better. I'm having lady issues which I'm guessing is from the chemo since the doctors can't figure it out but other than that I'm seeing huge improvement since surgery a couple weeks ago! Thank you all for your continued prayers and I will continue to update you on my progress!
Thursday, November 22, 2012
Surgery!!
Ok so I went to the ER last Thursday morning. Turns out I needed emergency gallbladder surgery. Soooo wasn't expecting that! It was very enlarged and inflamed with adema and scarring from previous infections and issues. My fevers didn't go away after surgery so they put me on vancomycin and flagyll and kept me until Tuesday to make sure my fevers were going away. So far so good. Just gotta keep being safe and taking these antibiotics!!
Tuesday, November 13, 2012
2 months since infusion
I'm in a lot of pain and even though I was able to eat some spaghettios today, I'm still nauseous. They're putting me back on flagyll in case it's the c diff but a virus has been going around so idk. I haven't been around any sick people but who knows. I'm also super super super dizzy. I'm getting a blood transfusion tomorrow so hopefully ill feel better after that.
Friday, November 9, 2012
Almost 2 months post transfusion
Well I'm getting over the c diff. My stomach pain is completely gone!!! I'm still experiencing some mild diarrhea but its most likely a side effect from my meds. My PCP has increased the meds for my heart palpitations and prescribed me something to increase my appetite since my appetite is nonexistent at this point. I have only eaten a small order of curly fries in the last 3 days. I've lost 20lbs, which I'm not totally mad about lol but this isn't the right way to lose weight. I only take half a pain killer a day now and thts for my back! Not my Crohn's!! Yay!! Other than that the only thing I have to worry about is my hemoglobin. It's dropping and if it doesn't start increasing I will need a blood transfusion. So lets pray about that!!
Friday, October 26, 2012
One month since discharge
I've had an ok week until today. I'm running a low grade fever and the chills are brutal but the lab work this week said everything's ok! The c diff symptoms have gotten better so in sure I'm still just getting over that.
On a different note, I just found out my masters thesis was published in the Journal of Korean Society of Clothing and Textiles!! My first academic publication!! Hoping this will help me when I look for a job as a university professor. I've also been considering a 6 month to a year break to teach English and do missionary work in a foreign country. I would need one that is paid without certification. Does anyone have any suggestions??
Wednesday, October 17, 2012
Getting over an infection
I've been on antibiotics for the c diff for several days now. I'm feeling better but am still experiencing some bloody diarrhea and nausea and vomiting. I have NO appetite still at all. Even though I'm still experiencing the symptoms, they aren't has severe as they were last week. So I guess we will just wait and see how I'm feeling in the next few days! I have faith ill be a million times better when the healing is over. God has big plans for me and I fully intend on carrying those plans out! :)
Thursday, October 11, 2012
Sick again
Well the last couple days I've had bad diarrhea, vomiting, and then a fever. I went to the ER last night. I have a UTI and c diff again. I'm starting antibiotics so hopefully ill feel better soon. My ct scan showed alot of inflammation in my sigmoid colon still so I'm going to talk to Dr Burt tomorrow to see if that's normal or if it means the transplant is unsuccessful. I honestly don't know. I will keep you updated!
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