Flare Up & 6th Stem Cell Birthday

I have been having a bad flare with diarrhea like 15 times a day. It has been going on a few months but Sunday I saw blood so I knew I needed to make an appointment.

I'm being tested for c diff. Ugh, it's been 6 years since I have had c diff and I so hope this isn't it. It isn't the type of thing you look forward to.

My blood work shows elevated inflammation markers and low hemoglobin.

On that note, today is my re-birthday! 6 years ago today was day 0 and I received my sister's stem cells and started my healing journey! I have had my ups and downs but I'm not dying anymore so yay! Lol

I'll keep you posted on my lab results!

Not again

My heart has been broken and now im experiencing severe anxiety, stress, and depression.

As we all know, that also comes with a crohns flare up.

Unlike other people who get a nervous stomach when they're upset, i have to worry about more longterm effects.

Needless to say, i hate this disease

Back Pain ER Trip

So i started having these severe, sharp pains in my back around my kidney and in my abdomen just below my ribs. It was hurting so bad, i couldn't sleep.

As much as i didnt want to, at 3:30am i caved and came to the er. I prayed on my way it wouldnt be a long wait or else i was going home and suffering through the pain. But God answered my prayer and there was no one in the waiting room.

They gave me fluids, pain meds and nausea meds to help..and they definitely did help. The doctor ordered blood work, urine tests and a ct scan of my kidneys.

All the tests came back great. Even though i suggested it may be my arthritis, the doctor feels its more likely a crohn's flare.

He gave me pain meds to go and is starting me in prednisone...yay, moon face will be back...😑😑😑

Praying my rheumatologist can get me on meds for my back and hoping my GI will figure out my flare (I have an MRI on December 10 and a cold in January).

I should be discharged in like 15min. Im ready to go home and sleep now!!

My many moods

Its hot. Im flaring. Heres my moods of the day for a little laugh

Crohn's and Nausea

Nausea: Tips to Make it Better

By: SHARON DOERRE
WEDNESDAY, AUG. 27, 2014, 7:47 am
 

Nau­sea is never fun! Almost every­one with IBD will expe­ri­ence it at one time or another. Nau­sea can reduce appetite and lead to dehy­dra­tion and weight loss as well as make daily life mis­er­able. Don’t suf­fer needlessly.

Check your med­ica­tions. Metho­tex­trate, aza­thio­prine, and iron sup­ple­ments can cause nau­sea. Often tak­ing such a med­ica­tion right before bed­time can let you sleep through the effect. Steroids can also impact the stom­ach if pro­tec­tive med­ica­tions like omepra­zole (Prilosec) or ran­i­ti­dine (Zan­tac) are not taken. Ask your phar­ma­cist if a new pre­scrip­tion can cause nau­sea and ways to avoid it.

Ask your doc­tor for an anti-emetic med­ica­tion. Zofran (ondansetron) and Reglan (meto­clo­pramide) can often help reduce the nau­sea pro­duced by IBD medications.

Think about your trig­gers. Motion, dairy, greasy foods, stress, and sinus drainage can all cause nau­sea. Dehy­dra­tion can inten­sify the impact and IBD can lower your thresh­old to var­i­ous trig­gers, even ones that never both­ered you before.

Stay hydrated. Meclizine and dimenhydrinate(Dramamine)areavailable over the counter and can help with motion sick­ness. Lac­taid can ease the nau­sea from too much dairy; Tums can help soothe a stom­ach irri­tated by greasy foods. Gin­ger candy and even nib­bling on slices of raw gin­ger root can set­tle the stom­ach and com­bat nau­sea. Aller­gies and colds that cause sinus con­ges­tion can cre­ate nau­sea when drainage hits the stom­ach. Over the counter allergy med­ica­tions such as cet­i­rizine (Zry­tec) as well as decon­ges­tants and expec­to­rants like guaife­n­esin (Mucinex)can reduce and thin con­ges­tion and can keep it from caus­ing stom­ach problems.

Nib­ble. An empty stom­ach almost always makes nau­sea worse. Find a sim­ple food that is safe for you – IBD is such an indi­vid­ual dis­ease that it is impos­si­ble to make uni­ver­sal rec­om­men­da­tions — but­saltines or GF crack­ers, apple­sauce , or cooked rice are often safe,and nib­ble often.  If there is an imme­di­ate increase in nau­sea with nib­bling, add a Tums, gin­ger cap­sule, or water with lemon and keep eating.

Add cooked veg­eta­bles to your diet. This is a long-term strat­egy for those not flar­ing but expe­ri­enc­ing nau­sea, gur­gling, and burp­ing after eat­ing. Cooked veg­eta­bles, (and raw veg­eta­bles if tol­er­ated,) can reduce the over­all acid­ity of the diges­tive tract.

Con­sult your GI. Peo­ple with Crohn’s dis­ease in the upper GI tract can expe­ri­ence almost con­stant nau­sea as part of a flare. This type of nau­sea needs to be man­aged by a GI doc­tor. Ask about adding or increas­ing the dose of a proton-pump inhibitor (PPI).PPIs like Prilosec can help reduce stom­ach acid and can be taken sev­eral times a day under a doctor’s super­vi­sion. Other med­ica­tions like sucral­fate (Carafate) can coat the stom­ach and let the lin­ing heal. While these long-term med­ica­tions are tak­ing hold, anti-emetics med­ica­tions like Zofran can keep the nau­sea away.

Go to the ER. Stric­tures and obstruc­tions in the small bowel can also cause nau­sea if the stom­ach can’t empty. If your nau­sea is accom­pa­nied by vom­it­ing, a swollen hard belly, con­sti­pa­tion and the inabil­ity to pass gas along with abdom­i­nal pain seek med­ical atten­tion. Nau­sea is often the first symp­tom of an obstruc­tion to appear. So take per­sis­tent nau­sea that doesn’t respond to treat­ment and is accom­pa­nied by wors­en­ing symp­toms and pain seriously.

But don’t for­get non-IBD causes of nau­sea! Hav­ing CD or UC doesn’t pro­tect you from get­ting preg­nant, eat­ing spoiled food, or catch­ing a virus. Stom­ach viruses, the flu, food poi­son­ing, and preg­nancy can all cause nau­sea and vom­it­ing. So ask and see if a stom­ach virus is going around your school or office or if any­one else who ate the same dish is feel­ing ill. If preg­nancy is even a remote pos­si­bil­ity, take a preg­nancy test!

© 2012–2015 The Crohn's Journey Foundation*. All Rights Reserved.
  *designated by the IRS as a 501(c)(3) organization eligible to receive tax-deductible contributions.

Crohn's Flare

I'm getting worse. Now the nausea is terrible. My pharmacy still hasn't filled my entocort prescription and I dont even know if I can afford it yet. Calling my gi tomorrow.  I also want to become a foster parent but im terrified my disability will prevent it. Im not capable of working but caring for a child is different.  Especially being a foster parent.  It's rewarding and may make me feel better. Im going to discuss this with my dr 1st. Hopefully he will be with me on this. I know other crohnies get the difference, even when others dont.

Waiting for an appointment

My dr appointment isnt for another few weeks which sucks bc my flare isnt getting any better and im out of all the meds that help and they wont call any in. Im so frustrated.