look at what i ate! 6 months post transplant!

Bone marrow spread! Adventurous! :)

My hair is growing!

6 month followup: day 1

Ok so Im in Chicago for my 6 month followup. So far Ive had labwork and saw Dr Barrett in GI. He said my pneumonia is worse than they thought and my lungs sound really bad. Also he said my hemoglobin is really low and my arthritis is bad and needs the attention of a top rheumotolgist. I did the Movi prep for my colonoscopy in a few hours. I handled it better than usual and didnt even throw up! Of course i didnt drink it all. The point where i knew even one more sip would make all of it come up was when i stopped to be safe. I will let you all know the outcome of tomorrows testing!

Pneumonia

My cmv has caused pneumonia so now Im battling both. Just one of the luxurious side effects of the transplant. On a lighter note, Im being taken off some of my transplant meds so thats good news! And Im off to Chicago in just a few days for a followup! I have scheduled a fertility and hormone consult here in April since Dr Burt's nurse told me that checking my fertility is not part of their study even though i heard they did it with one of their previous male patients so i don't know!but my body hair has once again stopped growing and my menstrual period has all but disappeared. So we will see!

CMV

im startng to feel the CMV symptoms now.

runny nose
coughing
sneezing
muscle aches
joint aches
ear aches
migraines
cramping
nausea

i was worried i had pnemonia, which cmv can cause, but im almost certain im judt experiencing the cmv in general.

closing in on 6 months...

im almost at my 6 month followup. im doing amazing. i have been a little nauseas this week because i tested positive for CMV..i may be going in public a little more than i should. i cant wait for that part to be over. i have had some serious depression issues lately so hopefully going to chicago for my followup will help get me out of my rut. im also fighting a col, arthritis and migrainespretty bad but thats about all!

Update out of hospital

I was rushed to the ER Tuesday because I felt perfectly fine and then it suddenly felt like something exploded inside of me. They admitted me and I was put on vancomycin even though my labs came back negative for any infections. I started feeling better by Friday but Dr Burt told the doctors to go ahead with a colonoscopy and with an ultrasound on my liver and pancreas because my liver enzymes were high.

Ok here's the results: I got magnesium, my hemoglobin dropped to 8 but I didn't get a blood transfusion. They stopped my voriconizole and cell cept. Liver and pancreas are fine! My liver enzymes will be monitored!

My colonoscopy showed only 3 ulcers, a few polyps, significantly reduced inflammation, and the part of my colon which was once full of inflammation and ulcers nearest my small bowel is now completely clear.

In other words... The stem cell transplant in only 4 months has almost completely put me in remission!! God is so good and I can't help but cry at how blessed I feel right now!!