Colonoscopy 2017

I welcomed the new year with a colonoscopy! I have some inflammation and an ulcer in my rectum. My doctor is putting me on Rowasa enemas so lets pray it helps!

All Backed Up

I ended up back at the ER the other day. I hadn't used the bathroom in 4 days, as most crohnies know, this is rare. Last time this happened, i had a bowel obstruction. So i went in, waited for hours, only to find out i was really backed up but no obstruction. 2 days later i finally went. My stomach was hard as a rock and i was in so much pain. But now im back to going like 5 times a day. Gotta love crohns and it's unpredictability...

No Rest For The Weary

I cannot sleep. I take ambien and my doctor just started me on mini press for ptsd nightmares. But no sleep. None. Nada. Nothing.

I have slept a matter of a few hours over the last 3 days and I'm taking sleeping medication.  It shouldn't be like this! Last night at 5am I broke down and went to the store and bought 2 bottles of nyquil to use over the next week or so. I also bought some sleep aid similar to zquil.

I ended up taking half a bottle of nyquil and 4 doses of sleep aid before i got to sleep. That lasted 2 hrs. Not even a full 2 hours; it was a broken up and down 2 hours. Ahh!!! I feel like im going crazy!

Insomia, you're a bitch. JS.

Back Pain ER Trip

So i started having these severe, sharp pains in my back around my kidney and in my abdomen just below my ribs. It was hurting so bad, i couldn't sleep.

As much as i didnt want to, at 3:30am i caved and came to the er. I prayed on my way it wouldnt be a long wait or else i was going home and suffering through the pain. But God answered my prayer and there was no one in the waiting room.

They gave me fluids, pain meds and nausea meds to help..and they definitely did help. The doctor ordered blood work, urine tests and a ct scan of my kidneys.

All the tests came back great. Even though i suggested it may be my arthritis, the doctor feels its more likely a crohn's flare.

He gave me pain meds to go and is starting me in prednisone...yay, moon face will be back...😑😑😑

Praying my rheumatologist can get me on meds for my back and hoping my GI will figure out my flare (I have an MRI on December 10 and a cold in January).

I should be discharged in like 15min. Im ready to go home and sleep now!!

When You Live With Pain

I have been diagnosed with spondyloarthritis. And i cannot sleep! Even though im on ambien for my insomnia, the pain is relentless and i get no more than a few hours of broken sleep a night. I'm starting to get beyond frustrated with the fact my meds havent been preauthorized yet and my dr won't call me back.

When i saw him the 1st time, he asked my pain level. I told him a 10 because it was. I could barely move, walk, sit. I cant even bend over. He said no a 10 means you wouldnt be sitting here talking to me right now.

Hold on. Let me tell you something! For over a decade, i have been poked and prodded, been through chemo, a stem cell transplant, every test imaginable, felt like i was giving birth to my intestines 15-25 times a day, was malnourished, had multiple picc lines, almost died twice, had surgery, have given my self injections for years, broken multiple bones, had my bones drilled in to 3 times and God knows what else. I am not a stranger to pain. Just because you can't read it on my face, doesn't mean it doesn't exist. It just means I've been through Hell already so I know how to walk through fire.

Please don't underestimate my pain, based on my facial expressions.  You haven't live through what I have.

Cars and Couches

I have a Saturn car and it has a couple recalls so I took it to be fixed today. They told me 2 hours. And even told me to come back 30min after that to be sure they were done. So I came back...3 hrs later. Guess what....i sat there for 2.5 more hours!!! I was soooo irritated! Especially since I was supposed to get a new tire on my car and pick up a new recliner today.

Well i made it time for the recliner but the tire will have to wait. I hate it because the tire is so bare it's showing wires. Needless to say, I wasn't a happy girl today.

However, im relaxing in my wonderful new, oversized fluffy recliner with my kitties and it's just the stress reliever I needed!

My Back

Omg my back is killing me. I keep trying to work out but it's making my back so much worse. It's hard because I want to lose weight so badly and taking any break affects my self esteem. But i can't make my arthritis worse either. I have to call my doctor...again...about my medicine. Im going to talk to scheduling and make them leave a message because i left a voicemail on the nurse and doctor line almost 2 weeks ago and no call back yet. Like im not in excruciating pain smh.