6 month follow up complete

My colonoscopy showed several pseudo polyps. This is because i was so severely ill and this is my bodys reaction to healing itself. They shouldn't be cancerous however they do show signs that it is very likely i will develop colon cancer at some point in the next 15 years or so. Dr Barrett (GI) in Chicago is moving to work at the university of Kentucky. He is adamant about taking care of me and doing cutting edge blue dye cancer screenings every year or more. So i will be going to see him in Kentucky from now on. I don't mind. He's an incredible doctor.Dr Burt however infuriated me. I haven't spoken to him in 6 months and he literally spent my entire visit with his hand on the doorknob trying to rush me out because i was his last patient of the day...after i already came in an hour early! and he told me not tp worry about my arthritis, it'll go away! Wow. So Im supposed to suffer in the mean time?? And he told Mr not to worry about my ulcers in my colon...they'll go away on their own!...what?!? Needless to say he called me back the next day and decided to take the advice of Dr Barrett and put me on a short course of Uceris, a mild asteroid with few side effects.   

look at what i ate! 6 months post transplant!

Bone marrow spread! Adventurous! :)

My hair is growing!

6 month followup: day 1

Ok so Im in Chicago for my 6 month followup. So far Ive had labwork and saw Dr Barrett in GI. He said my pneumonia is worse than they thought and my lungs sound really bad. Also he said my hemoglobin is really low and my arthritis is bad and needs the attention of a top rheumotolgist. I did the Movi prep for my colonoscopy in a few hours. I handled it better than usual and didnt even throw up! Of course i didnt drink it all. The point where i knew even one more sip would make all of it come up was when i stopped to be safe. I will let you all know the outcome of tomorrows testing!

Pneumonia

My cmv has caused pneumonia so now Im battling both. Just one of the luxurious side effects of the transplant. On a lighter note, Im being taken off some of my transplant meds so thats good news! And Im off to Chicago in just a few days for a followup! I have scheduled a fertility and hormone consult here in April since Dr Burt's nurse told me that checking my fertility is not part of their study even though i heard they did it with one of their previous male patients so i don't know!but my body hair has once again stopped growing and my menstrual period has all but disappeared. So we will see!

CMV

im startng to feel the CMV symptoms now.

runny nose
coughing
sneezing
muscle aches
joint aches
ear aches
migraines
cramping
nausea

i was worried i had pnemonia, which cmv can cause, but im almost certain im judt experiencing the cmv in general.

closing in on 6 months...

im almost at my 6 month followup. im doing amazing. i have been a little nauseas this week because i tested positive for CMV..i may be going in public a little more than i should. i cant wait for that part to be over. i have had some serious depression issues lately so hopefully going to chicago for my followup will help get me out of my rut. im also fighting a col, arthritis and migrainespretty bad but thats about all!