Day 11

Well I was hoping to go home today but I'm not quite there yet. We will see about tomorrow. My platelets are right where they need to be to go home but they want to be sure they're continuing to rise before sending me home. Plus my white cell counts are at 0.8 and they need to be at 1.0. I'm taking neupogen shots still so they should be up in the next couple of days.

I've barely had any nausea or pain. I'm only using the bathroom a couple times a day. It's loose but they said its most likely because of all the anti rejection and anti viral meds. I feel good. I'm just exhausted. My body has been put through the ringer and I'm feeling it. I think once I'm home with my family in my own house and in my own bed, I'm going to feel amazing!

Amy, Dr Burt's nurse, just discussed my discharge instructions with me which is exciting because it means I'm almost done and I've made it through!

On a different note, my blog was featured on Healthline.com's Top 11 Crohns Blogs of 2012! How exciting!! They specifically mentioned my positive outlook despite my condition and that seriously brought tears to my eyes. I knew I was going through this for a higher purpose of reaching others and that confirmed it for me! That made all of my struggles worth it because someone is reading and someone is getting something from it. God is so good!

Day 10

My counts are finally going up and I should be going home soon! I feel better and I've already eaten twice today!!! Yay!!! Dr Burt said everything looks good and when he pressed on my belly...no pain!!! I'm still weak as can be expected but I do see a difference already. Praying this continues to get better!

Also I haven't used the bathroom in the last day but when I try only blood comes out, Dr Burt says its common in Crohns patients of his. It's almost like the body is expulsing the disease from my body! Praying thats true!

Day 9: no hair, no shame

I  not ashamed of having no hair. I'm embracing it. It's part of the process. It symbolizes strength and road to recovery. I'm proud of it. 

 

Day 9

I shaved my hair off today. It wasn't as emotional as I anticipated. I'm coping well. The pain has been better today. Lots of diarrhea last night with soooo much pain but today has been much more manageable. They switched my picc line because they suspected an infection in it. They're doing stool tests now for more research as to where this infection is coming from. I'm on tons of antibiotics still that will cover all areas of my body. I'm taking two neupogen shots a day to increase my white blood cells.

The doctor says I'm doing really well an they expect discharge this week. My appetite is still crummy but I get like that in hospitals. I eat better at home. But my Crohns symptoms seem better. I feel like I'm feeling more of the transplant side effects right now. But time will tell !

Day 8

Yesterday was rough. Bad tremors, fevers, really high blood pressure, very low heart rate, bad stomach pains. Today I had to have another platlet transfusion and my blood pressure has been super low so no blood transfusion today. Still battling severe abdominal cramping and stabbing pains but they only come a few times a day, in between that, I'm pain free.

I'm on tons of antibiotics and anti viral and anti rejections so Im covered for the infection they found. My nausea is way down and no diarrhea. Just the pain, especially while trying to use the bathroom. It gets so bad I shake and vomit. No fun.

Amy says my counts could be up as soon as Monday. Then once the pain goes away, I go home!!

Day 6

Day 6 I now have chemo brain. Basically I can't remember anything that  or has happened or was said. Sorry if it seems kinda loopy. I am lol not from any new meds. Just chemo brain and sleep deprivation. It took me an hour to post this one. I would be awake and talkin then just slap asleep I think a lot of this memory loss is sleep deprivation

Will have to talk to everyone tomorrow when I'm not falling asleep in between each word

Day 5 afterthought :)

If anyone wants me to post on a certain topic, Crohns related of course lol please leave a comment to this post and I will start posting more! That can include personal updates on my stem cell transplant, or any general info you may want to find but can't. Let me help!