Day 5: still neutropenic

I am so sorry I haven't updated recently. Ever since the day before my transplant day, I was feeling so weak and nauseas and in a good bit of abdominal pain. The pain meds I had been getting were making me worse. So when I realized that, I had them take me off everything but Norco which helps a lot more.

The day before my transfusion, I started getting these bad abdominal cramps and I'd sit on the toilet for forever in writhing pain and nothing would come out. This has continued. They gave me a laxative for the first time the other day. And now, while its still sooo very painful, it's regulating to once or twice a day. The nausea is getting much better and I'm able to sleep again.

Day 0: September 13, 2012 10:18am I had my 2nd birthday. They brought the cells in Luke something from a movie, steam and all lol they blessed the cells (my choice) and started the infusion. They came in a small bag that looked like blood. The second they went in I tasted creamed corn, started breathing heavy and started vomiting through the entire thing. But Dr Burt was in the room with me and in 30min it was all done. I was pretty suck for the next two days but I'm gradually getting better.

It's now Day 5 and I'm full of energy with the occasional pain and nausea and a few other issues...needed 2 blood transfusions, one platelet transfusion, a couple bad fevers, and I have a lot of blood in my urine. So they're monitoring me and as soon as my counts go up, I go home!! Yay!!  Just be praying this really works and I'm gonna be better than I can remember being!

Day -2

Have been really sick today. Very weak. Had to have a blood transfusion but I'm all done with chemo now. Almost there...

Day -3

Last day of chemo is tomorrow!! Yay!! I've tolerated it fairly well. They have me on cytoxan and campath today and tomorrow. They kept the cytoxan on a slow trip and loaded me down with Benadryl and I've been doing well. Getting weak but went 2 days with no diarrhea! And minimal pain now! I'm feeling more myself again. Just as soon as I finish this :)

Day -4

Taking fludarabine, cytoxan, and campath today. Was having a little reaction so they loaded me down with tons of Benadryl and now I feel much better. I can't really eat but my Crohns symptoms seem to be better if not almost gone. They said I'll lose my hair in a couple weeks. And they said my worst days will be these last few days of chemo and the day of transplantation.

Day -5

Started cytoxan with the fludarabine, strong steroids, some anti viral meds, and mesna.  And they have me something to make me per a lot so the cytoxan doesn't give me bladder issues. I've had to take a lot of Benadryl because my nose was burning and my head was killing me. They also gave me merinol. Which is medicinal marijuana and that helped a lot but made me sleep a lot.

Day -7

Started a 4 hour course of magnesium today and now I'm on another 30min dose of fludarabine. I'm a little nauseous today. But I feel like its more my normal Crohns nausea. Will keep you all updated!!

Day -8

Just started chemo today. The picc line had problems going in right so that took 3 hrs yesterday. Then I was admitted yesterday evening. Dr Burt came in and gave the ok to start chemo. Today I'm getting a 30min dose of fludarbine. Almost done for the day!