Update out of hospital

I was rushed to the ER Tuesday because I felt perfectly fine and then it suddenly felt like something exploded inside of me. They admitted me and I was put on vancomycin even though my labs came back negative for any infections. I started feeling better by Friday but Dr Burt told the doctors to go ahead with a colonoscopy and with an ultrasound on my liver and pancreas because my liver enzymes were high.

Ok here's the results: I got magnesium, my hemoglobin dropped to 8 but I didn't get a blood transfusion. They stopped my voriconizole and cell cept. Liver and pancreas are fine! My liver enzymes will be monitored!

My colonoscopy showed only 3 ulcers, a few polyps, significantly reduced inflammation, and the part of my colon which was once full of inflammation and ulcers nearest my small bowel is now completely clear.

In other words... The stem cell transplant in only 4 months has almost completely put me in remission!! God is so good and I can't help but cry at how blessed I feel right now!!

Update from mid january

Ok so I saw my GI dr. I'm going back on vancomycin for c diff even though my test came back negative, it could still be living in my body. I'm on Ativan plus pexeva to help with anxiety and sleep. I went to sleep before midnight lastnight and slept until 2pm and feel amazing today! I don't know if its because I was exhausted or because of the Ativan. We will see!  I'm also now on something for my migraines which is helping too. And I'm taking carafate to help coat my stomach and reduce the burning I'm having. So far so good!!

Note: I was also told to stop taking the phenergan for nausea because it is linked to causing me to have restless legs at night!! Thought this info might help some of you!

Four months post transplant!

Well I'm still being treated for c diff since my Crohn's symptoms have been suddenly and significantly worse this past week but I'm feeling better. It could very well be because of something I've eaten since I'm now eating anything I want now.. I'm thinking I should slow down a bit and allow myself to heal more. I also had a sinus infection and eye infection but its gone now after some antibiotics. I'm having issues sleeping again so it's back to the doctor for something to help me sleep and help with my anxiety since I'm having coping issues as well. We are also changing around my birth control and hormone meds because I was bleeding for 2 months straight and right after my blood transfusion, my hemoglobin dropped suddenly once again. But one positive thing is I'm never in pain from my Crohn's. I experience some burning in my stomach but I think it's from my acid reflux. Well! That's all dr now!